Tuesday, May 12, 2009

Gosh, sorry!

I have been thinking I should get over here, but life gets so busy at this time of year! I can write about some of it:

Last week my big kids were in the Spring STEP Show. As far as middle school shows go, I don't see how anyone could beat what Jack and Christine Jeckot and company do with and for these kids. I try to volunteer as much as I can, but I normally end up just helping out during show week. Same with this year. I worked backstage when the 6th graders bussed over to see the show last Wednesday morning, and Thursday morning I held a door shut for two hours (ouch).

Jason had a fairly big lead in the show. Allison spent four months downplaying her part, but it was a terrific part (also a lead) and she made it even better. Knowing all this, my in-laws came up from Florida to watch, and Lori and Dave settled in South Jersey for a few days, starting with the show. I get so excited about the shows, I saw all four performances. Usually the auditorium is freezing, but of course now that I dress warm and have hot flashes, the air didn't work. So I did end up stuffing the wig in my purse and going with a buff for the second half of one show. Allison wasn't thrilled, but she didn't say a word. And poor Civia, who was trying to help me figure out what to do with it other than sticking it in my purse. For awhile the wig was hanging backstage on a paper towel roll with the Kiss costume wigs that were going to be used later in the show. But as expensive as my wig was (thanks as usual, Charlie and Libby), I couldn't take my mind off the idea that it could end up on teenage heads while they were wearing Kiss makeup! So that didn't last long. It was fine in my purse.

On Friday we just hung with family, but Saturday was the Mt. Laurel Baseball day at the Phillies game. Hot, but fun! I love seeing all the kids marching around the field. Last year I marched with them, so it was Ken's turn this year. We all went, 11 of us.

And Sunday, Mother's Day, was the Komen Walk. I'll attach a couple pictures (including one of me bald, thanks to the wind). It wasn't quite how I expected it, with lots of pink shirt camaradie and getting to know new people, but I was happy to have so many of my regular people, whom I already love, with me. And other than the wind, the weather was great! And thanks so much, Jill, for hosting that great brunch after the Walk. It was special to have Civia and her mom, and my in-laws, over for that.

So yesterday was my LAST TREATMENT! I didn't even feel the IV going in, it was the best one of all. Woohooo! I ran around all morning so I didn't get my pre-treatment good-tasting meal, but Barb (who took me to Penn) and I went out for dinner afterward. Weird, the beginning of my burrito tasted better than the end. I lose my taste buds that quickly now, I guess. Later, Barb, MJ, and I went for a nighttime walk (after I tried again to work out payment arrangements with Penn).

So far today I've had 2.2 bottles of water, and I've vacuumed, and I've emailed two teachers, and finished the last of the laundry (ungodly amount of laundry). I've taken Claritin (supposed to stave off bone pain that could be caused by the neulasta) and my last morning steroids. I have to take Zofran next (with breakfast, still waiting for Jonah to wake up), and a little later I'll take the Emend (the good nausea stuff). While Jonah's in school this afternoon I have to return stuff, and then tonight will be crazy: I have to take Jonah, in baseball gear, with me to Penn by 4:30. Get my neulasta shot and head back, so I can pick up the Hebrew school boys. Drop off Jonah at t-ball (the other parents agreed to keep an eye on him for me), then take the Hebrew boys to synagogue, then get back to the game. Then back to the hebrew school. Crazy! I'll definitely be ready to sleep all day tomorrow. And the returns are all at Centerton Square, so I should still end up with time for a nap this afternoon.

Anyway, even knowing what's coming over the next few days, I just feel so good, so thrilled. It's just a few more days! I can't believe the two months went that fast. Four treatments never seemed all that hard to handle until I had the first one. Then for awhile it seemed insurmountable. I'm so blessed to have found a medical staff that cares so much about not only my health, but my comfort. Everything I've needed has immediately ended up at my disposal.

After talking to Dr. Fox yesterday, I'm leaning toward having radiation at Penn. So I'll meet with the radiation oncologist there as soon as they call to give me the appointment. Fox said they'll give me parking passes, so that's what makes the difference. I do feel so comfortable at Penn, anyway. Oh, and I did not have my gene test yesterday, they screwed up. So I have to go back Monday afternoon for that, and they'll pay for that parking, too, since it was their mistake. Parking down there is at least $6 a visit, so it adds up quickly! Bad enough that the toll is $4 each trip.

I won't see Dr. Fox for four months.

Love you all!

2 comments:

Anonymous said...

Thanks for being a great host! I'm happy this part of the treatment is history.

Marcie said...

YAHOO to the last treatment!!! Michelle, you are amazing!! XOXOXOXO Love the pictures of the walk! Wish I could've joined you!